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Reply #20 Delifrance's post
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deli...aku nk tanye sketla...kalo kita nk simpan stemcell ni camne ek? kene bgtau kat hosp masa bersalin ke ape? |
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Reply #21 izati_abc's post
kalau kat government... kite boleh donate ke national cord blood bank (satu unit dlm national blood bank/tabung darah negara kat jalan tun razak tu)
tak sure dah buat kat semua hospital gomen atau dekat gh je.. ye klah sebab mende ni baru so gomen nak buat pon slow2 lah, byk benda kene pikir kan, nak sediakan the facilities, nak aturkan collection etc
kalau nak simpan utk family sendiri at private cord blood bank mcm stemlife, just call masa bersalin...jumpa to listen to what it is all about. kalau nak sign up, then sign agreement and dpt satu collection bank utk diberi pada dokter time2 dekat nak bersalin nanti. kalau tanak, takpe..no harm done sebab mende ni tak leh di paksa2 kan. if not this time, maybe mase next baby. at the very last minute pon boleh janji bagitau nurse/dokter sebelum baby keluar. sebab kat labor room mana2 ade spare kits, lepas dah collect baru sign agreement lah. |
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Reply #22 Delifrance's post
thanx deli...aku pon igt nk consider for next baby la ni...tu pon sbb terbaca ape yg deli tulis ni...rasa byk manfaat jgk...mana la tau kan kemudian harii...cuma nk tau la jgk pasal prosedur, kos sume tu.....jahil la aku bende2 ni..... |
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a'ah...rasanya kos dia agak mahal kan??
ku pun pernah baca dari leaflet stemLife...terbuntang bijik mato den  |
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Originally posted by Delifrance at 28-10-2008 10:47 AM 
kite collect stemcell dari bone marrow (kalau tak simpan masa baby). ?Dari baby yg baru lahir - what we want to collect is the UMBILICAL CORD BLOOD (darah tali pusat baby) yg mengandungi b ...
yes deli tq .... |
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jgn la kata terbuntang bijik mata asu.. boleh buat 12 months installment. comes with 100k trasnplant coverage free-of-charge (no premium no hidden cost)
i last yr, dgn ceaser lagi, dgn sebelum tu dpt maid yg lari ikut kawan la... pastu gatai2 pi book makcik urut yg rupenye tersangat lah mahal etc...
tp bila pikirkan, kalau anak sakit cost tu lagi mahal... or one day entah2 rezeki murah, duit byk rumah byk kete byk tp anak sakit and kita tak dpt carikan matching stemcell, lagi sedih. tp apa2 pon kita doakan anak2 kite semua sihat dan tak perlukan lansung stemcell ni sampai bila2... aminnn
at least dah simpan, pakai atau tak, that's a different story. dia macam insurance la kan. |
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Originally posted by Delifrance at 28-10-2008 04:08 PM 
jgn la kata terbuntang bijik mata asu.. boleh buat 12 months installment. comes with 100k trasnplant coverage free-of-charge (no premium no hidden cost)
i last yr, dgn ceaser lagi, dgn sebelum ...
Memang we was terbuntang bijik mate besoooo...coz the cheapest was abt 5k kot? X bape ingat lerr...coz baru pindah umah, nak csect lagi...nak itu ini...aduh...last2 tawakal je laa..x jadi nak buat.... Tapi tu lah, I plan baby ni last one...doa2 takde ape2 ler...amiinnnn....
p/s : deli ..bleh bg contact details? Nak kasik kat my friend...
So mummies out there, check la history both sides ye..yg lum kaawin tu better buat blood test...Kesian tgk baby yg ade talasemia ni. Senang sakit. tak aktif cam biasa.... |
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erm.... anak aku pengidap thelesemia neh...
kedua2nyer skali n hsbn aku carrier... aku, -ve... patutnyer chances anak aku nk kena very slim... n Dr ckp, she never met case cam anak aku ni so far....
anak aku tu.... both detected once they r 3yrs old... sebelum nih T intermedia... reading hb around 7-8 jer... now, alhamdulillah... dh naik around 10... something miracle according to the doctors... aku pon x tau, aper yg aku dh buat utk naikkn hb anak2 aku tuh... coz, aku cuba sumer benda... asalkn x merbahaya... anak2 aku penah buat blood transfusion once.. each... alhamdulillah... tu 1st n last....
nnti insyaallah esok aku sambung ekk.. aper yg aku dh usahakan utk anak2 aku tuh... cumer, pesan aku... aper pon kata doktor, jgn give up... teruskan usaha selain dr berdoa kepada Allah.... |
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Reply #28 MrsJohn's post
darling.. 5k tu utk simpan selama 21 tahun la...
tak yah la amik yg 5k tu...just bayar 1st year (RM2500) now ade discount lagi, amik la ansuran 12 months. lepas tu tiap2 tahun bayar RM250 as the annual maintenance fee...
5k tu pon boleh buat installment 12 bulan jugak. |
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mrsjohn... tu kite letak no tepon kat siggy tu... sms je kalau ada pape soalan |
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my doter last month admitted sebab muntah-muntah......this was the 2nd time.........doc suspect viral....but bila depa study blood cell tu...depa nampak abnormality........and the pead came and ask.......do u guys have thallasemia.......mau nak runtuh dunia masa tu.......we said we never get tested for it.......
then doc said.......they'll do the blood test for my doter..... blood morphology and thallesemia trait....... based on doc tu cakap, like 5% of the population in chinese and malay ader characteristic ni.........for chinese.....if both carrier, and they still decide nak ader anak, they will monitor and test kandungan untuk confirm whether ader ke tak...kalau ader major......then they will abort........
coming back 1 week later, baru dapat test result....... alhamdulillah....my doter clear.......her symptom sama macam thallasemia becoz dia still bf and becoz of that her body actually lacks of iron (it is still a serious matter, since iron penting dalam darah)..... so right now dia kena minum iron syrup 5ml everyday for a month and kena gi follow up balik....
tapi betul macam u all cakap.....kita kadang kadang ni ignorant......even in my case, anak dah dua......baru terpikir......nak pegi test for trait...... |
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Reply #32 mder's post
mder... errr... u anak dua.. aku anak 3, lagi pulak ari2 jumpa org yg nak sign up stemcel (tipu je, tak la ari2..ade ari aku lepak goyang kaki  ) tp tetap tak pernah check . mcm aku ni ignorant dan sikap 'tak apa' la kot tp utk org lain rasenye ' takda awareness" . tak ada awareness dgn ignorant sama ke?
kita pon tak pernah jumpa poster2 dr MOH ke mana2 ke yg ditampal kat klinik2 suruh kita check thallasemia ni kan? kalau nak suh penyakit, agaknye semua penyakit kite kene check tp kan thallasemia ni sekali seumur idup cukup kot utk tau kite ade trait or not. RM100+ per person
injection2 yg mahal2 yg tak semestinye perlu kita amik tu byk lak poster2 kat dinding2 sepital/klink sebab itu drpd private companies. apa salahnya letak satu 'facts about thallasemia. have ur blood tested to know if u are a carrier or not' kat situ kasik orang ramai aware sket... kan?? |
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Originally posted by Delifrance at 29-10-2008 07:21 PM 
darling.. 5k tu utk simpan selama 21 tahun la...
tak yah la amik yg 5k tu...just bayar 1st year (RM2500) now ade discount lagi, amik la ansuran 12 months. lepas tu tiap2 tahun bayar RM250 as t ...
I took stemlife also... yg 2500 punya installment every mth 250/mth for 1 year macam tu lah. After that u just renew jer insurance dia utk setahun. So far alhamdulillah ... stemlife better than others sbb the way they keep the blood itself. kalau yg lain tak brape hygiene and boleh rosak. Stemlife dia divide into 2 block-60% and 40% so if u have used 60% u got 40% left.
Cuma wonder ... blood from the stemcells dah boleh distinguish trus thallasemia ker?? atau blood tuh masih fresh lagik??? |
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Reply #34 buntalz's post
biasanya masa sign up, kalau parents ada T trait, kite akan monitor as special case la kan and follow up balik whether the cells are good to be used or not.
kalau parents tak tahu yg both of them are carrier, kita akan simpan je stemcell tu until informed by parents that the baby is a T major sebab mase test, T is not included
kalau salah sorang mak atau ayah is a carrier/minor - anak boleh jadi carrier.. ini mmg takde masalah utk stemcell tu disimpan - can be used to treat other diseases in the future . carrier/minor ni tak ada symptom .. dia pembawa sahaja |
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Reply #35 Delifrance's post
nak tanya macam mana nak distinguish parents tuh pembawa ker apa ker... ada ciri2 ker... such as macam blood hB kurang ker ... dizziness always ker migrain ker...  |
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bagus tread ni..anak sy pun ada sakit ni..tapinya yg beta.. Last edited by izza_sukeri on 3-9-2012 05:25 PM
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Post time 28-10-2008 11:13 AM
Author
