MOST teenage boys love to run around and play – but ‘Butterfly Boy’ Jonathan’s skin is so delicate it falls away at the slightest knock. Fourteen year-old Jonathan Pitre, from Russell, Canada, lives in constant pain as 90% of his skin blisters and peels from his body - making it look as if he has third degree burns. The excruciating pain is so bad he has constant headaches and nausea, and often spends nights awake in agony. Helpless mum Tina Boileau, 35, has to watch her son writhe in pain as she wraps him from head to toe in bandages to ensure he doesn’t get infections.
ai ada follow satu fb pasal 2 orang budak ni ada penyakit yang sama macam ni. kat malaysia ni la..mak dia rajin update sebab nak educate pasal penyakit EB ni.
DeeqarhTupperware for Diqah&Aqee. cuba korang tengok. sedih ok tengok budak2 ni. tiap kali tengok fb mak dia pasal budak2 ni, aduhh meruntun jiwa rasa. kite luka sikit dah sakit. tapi diorang....
oo budak ni , tgk kt utube
mmg bijak & matang ... siap dia ckp wpun dia tau dia x lama idup .. tp
dia nk buat each and every second count ... such a wise brave boy tgk waktu dia salin bandage tuh .. kesian giler ... mesti pedih ..
an amazing boy
Post time 20-4-2016 01:27 PM
变色卡
Post time 20-4-2016 02:41 PM
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