Uterine fibroid...fighting it

orked2006

Assalamulaikum,

terlebih dahulu nk minta izin dr mod utk buat posting...
just to share my experience....
hopefully it can help others
and others can help me also..

I'm married dan ada anak.
My menses dr kecik sampai dh kawen hingga sekarang sentiasa heavy
abdominal cramp tu biasa lh...
lepas beranak pun still mcm tu...

However...for the past 2-3 years, perasan my menses is slightly heavier...
but it will still last about 7-8 days...
after that....kering.

However for the past 3months....
my menses becoming longer....
after 7 hari...nampak mcm nk kering...
tapi still keluar lendir2 hitam....
and it last sampai 13 days....

Mula2 tk risau...further more....saya tkde intermenstrual bleeding
vaginal discharge pun tkde....
mungkin stress kot...tp people said..klu stress....menses jd shorter
Second month....still macam tu....last for 12-13 days...
I'm getting a bit worried....macam2 ada dlm kpala...

Search the internet.....read about all those things...
especially about cancer rahim dn kanser pangkal rahim...

orked2006

3rd month....masa menses...
perasan mcm ada bengkak kt belah bawah kanan perut...check bila baring
especially bila bladder distended....
bila buang air...mass tu turun sikit....
masa ni got really2 scared
and after 12days...still kuar lendir2 hitam...
mmg tk tahan...terus jumpa gynae...
lemah lutut....

she palpate the abdomen...and confirm mmg ada vague mass kt belah kanan...
she did the U/S for me....
cakap ada fibroid kt belah kanan....about 6 cm....
however she said that my endometrium is thickend...about 24 cm...
both my ovaries are normal (from transvaginal u/s)
my cervix also looks helathy...

dia wat pap smear...
dan she tried to take some tissue dari endometrium for HPE
unfortunately, my cervix was very tight...she tried to push the instrument thru...but cannot get in....
Allah je tahu...sakit nye

After that she said ..it got to be under GA...
she will do hysteroscopy and D & C sekali....
masa tu otak dh tkleh fikir....
angguk je

orked2006

Tanya doktor....why my endometrium thickend?
dia kata mungkin sebab hormon....
tp kena make sure tkde yg sinister...
m not worried about the fibroid...sebab benda tu biasa je..

balik rumah....
depress giler...
Allah je tahu....macam2 bermain di kpala...
satu hari satu malam search the internet...googled everything

read about endometrial thickening....
selalu nye they are more worrying klu dlm org yg dah putus haid....
takut kena kanser rahim....
tp even dlm wanita yg masih period...
ada jugak berlaku

yg paling menakutkan saya...
everywhere I search....selalunye klu endometruim thickened pun dalam 12 cm - 14 cm...
yg extreme saya terjumpa....19 cm dh wanita tu masih menstruating...
tapi mine was 24 cm....
rasa cam nk nangis pun ada...
takut benda2 yg ditakuti

Saya berdoa bnyk2 kt Allah masa tu....
takutnye bkn men....
dan about 1 week ago...saya buat procedure tu....
it is a short procedure....
less than 1/2 hour kot...
bila sedar...rasa cam period pain....

orked2006

ptg tu...my gynae dtg....
dia tunjuk video sekali....
I got big uterine fibroid on my right side....
my endometrium not thickened...looks healthy..she said that she'not worried
lagipun tk nampak blood vessels yg pelik2...(alhamdulillah...lega sket!)

however...she perasan I got endometrial polyp...
dan dia rasa itulah penyebabnye my menses prolong...
she said she dh cut my polyp and will sent for HPE (takutnye )
however in overall...she rasa nothing to worry....

I was discharged on the same day....
and she started me on norethisterone 10mg bd
and also some pain killer.....
perasaan tu rasa lega sket...but still anxious to wait for the final result

balik rumah...search plak endometrial polyp....
less than 1% associated with cancer....lega sket...
and selalunye associated dgn hormon imbalance...

lepas tu baca pasal norethisterone....
rupanye this is to stop the excessive stimulation of estrogen (rasa je)
but side effects dia....u wil have the post menopausal symptoms...
seperti hot flushes...mood swing...postural dizziness...wieght gain..etc...
ramai yg tkleh tahan side effects dia

orked2006

after few days mkn ubat ni....
dh start ada hot flush.....
bdn rasa cm bloated...
and yes...the postural dizziness mmg ada....skang ni kena bgn selow2....

search lg internet....in there an alternative way to this....
ada yg nasihat pasal diet...dan saya rasa ada betul nye...
they said...ada diet kite yg contain estrogen....
they advice avoid soy produt....
they also advice to avoid taking polyunsaturated oil

rupa2nya...polyunsaturated oil tu mcm minyak jagung...minyak canola etc...
dulu sebab org takut pada darah tinggi dan cholesterol...
seme bertukar ke polyunsaturated oil...tp ini ada masaalah plak pada penyakit ni...
mmg sejak 2-3 tahun....my house dh tk guna minyak biasa...
seme pakai minyak jagung..canola etc seba my hubby ada high cholesterol

dia org kata....utk kes camni...the best minyak kelapa....
tp mana nk cari minyak kelapa
kt kedai...yg ada pun minyak kelapa sawit...

orked2006

and I also search for the FIBROID...
And I think mmg very common...
tanya gak kt member...depa pun ada...ada yg kata 3 cm...
ada yg kata 1 cm...
ada yg 7cm .....

of course...fibroid ni benign...bkn nye cancer....
wanita kadang2 tkde symptoms apa2 pun...
bila dh post menopausal...dia akan kecik...
tp kite lambat lg nk menopause

selalunye option utk fibroid....
wait n see...
buang rahim klu dh complete family...
atau buang fibroid tu saje...klu tk besor....

terbaca kt forum...
ada pompuan mat salleh ni...ada 3 cm fibroid...
doktor dia kata....biarkn je...
jadi dia pun biarkn lah...until satu hari dia masuk A&E...for other reason...
doktor yg check kt situ kata....bengkak dia mcm16 minggu mengandung....
advise dia cepat2 jumpa gynae...
dn gynae dia ckt ..kena wat hysterectomy

orked2006

Anyway...satu minggu cuti...dok rumah...
search and search the internet....
and continue praying to allah...
that my result tkde apa2....

hr ni....tepon klinik....
alhamdulillah...pap smear normal...
endometrial specimen pun ok...
polyp tu just functional benign polyp...
aku sujud...bersyukur sgt2 kt Allah...alhamdulillah!
ingat nk wat doa selamat 2minggu lagi....

this also give me the opportunity to search more about fibroid....
mmg terasa bengkak kt perut bawah tu....
klu biar...takut membesar...
tapi...kite takut operation ...
klu bleh tk nak buang rahim ni...ataupun buat myomectomy sebagainye...

member kt opis ckp cuba je jeli gamat...mana tahu berkesan....
ntahlah...
search lg forum2 kt google...
come across 2 product....mcm ala2 vitamin...
Vitalazyn....dn yg satu lg neprinol....
ada yg dh cuba and it works....
ada tu mkn ubat tu....fibroid dia dr belh rasa kt perut ...terus dh tk rasa....

what choice do I have....
tadi baru je order neprinol....for 300tablets dr US...
cost me USD169 campur sekali ngan postage....
nanti jumpa doktor...nk ckp nk berhenti norethisterone ni....
don'tknow what her reaction is going to be....
but even terbaca...pesakit tu...dia nye gynae syorkan sendiri sebab it works for her...

my frens pun pernah mkn norethisterone...tp after 3months...berhenti..tk tahhan side effects....
fibroid dia kecut...tplepas tu besor balik....
maybe this will justify me to try this neprinol....

m gonna try it....
klu tk jalan....maybe cuba jeli gamat kot
will keep u all informed the progress....
at the end of the day.....just want to avoid surgery ...especially...hysterectomy

maybe other forummers ada masalah sama dn bleh share ngan saya....
thanks!

honeybee1802

well..orked..it's the way kita msk rasanya...we tend to goreng....goreng and goreng...so minyak yg baik pun jdk tak baik dahh...and cookies...all hydrogenated fatss....add up with more sugar...stress...yummy..datang le penyakit....
actually my problem lain skit dr u..i got endo...but bc2 puncanya hampir sama gaks...excessive oestrogen maybe the culprit...nih perut rs membuncit jekk....ntah ler ari tuh gi follow up takde plak dr mention haper2 ...tp bc gaks org ada endo tends to get fibroid jugak...kalo scan nampak mcm mana orked?dinding rahim tebal gitu ker?