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Potter Syndrome

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Post time 23-12-2013 02:02 PM | Show all posts |Read mode
Salam...

Sy sekarang pregnant nk masuk 25 weeks.. baru discharged ward sbb air ketuban kering kontang and ada klua brownish. Sy dirujuk ke MFM,HKL dan baby dalam kandungan sy disahkan ada Potter Syndrome di mana baby sy takde kidneys.. disbbkan dia xde kidneys so dia x dpt nk pass urine jd air ketuban habis. last friday ade follow up lagi dan dada baby kosong sbb paru2 tak develop lgsg. kepala  pun melonjong ke atas. buat masa skang sy dan suami decided to carry to term... sbb baby dh 25 weeks jadi nk terminate baby is not an option.   

sy ade buat 1 procedure dipggl fetal blood sampling dimana perut sy dicucuk di kedudukan yg paling baik utk smpi ke jantung baby. test dibuat utk check punca Potter Syndrome samada hanya sbb baby sy ada kesilapan genetic (fluke) @ dia dr genetic sy dan suami... risau nk tggu next appointment utk tau result sbb kalau ianya sbb genetic dr parents mmg kami xkan dpt baby sndri

sesiapa penah ade same experience memandangkan hasil google x jumpa langsung any story sharing dr m'sia.. sy risau nk hadapi hari delivery @ smpi baby mengalah (IUD). risau jugak takut next pregnancy akan jd lg..  
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Post time 27-12-2013 09:08 AM | Show all posts
beratnya dugaan TT....apa cadangan doc ? sbb dr penerangan TT bby tu tak mungkin hidup - kidneys takde,paru2 takde....procedure  fetal blood sampling tu mmg kene wat ke?tak leh ke tgu bby kuar?......

bykkan sabar.....

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Post time 30-12-2013 04:36 PM | Show all posts
YaAllah..sabar byk2..berat nya dugaan
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Post time 21-5-2014 01:51 AM | Show all posts
Hi TT, any news?
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